Strongbridge CareConnection Patient Support
Strongbridge CareConnection makes sure patients are getting the support they need
Strongbridge is committed to providing a wide range of services and support for patients and their family members living with Primary Periodic Paralysis (PPP). Call 844‑KEVEYIS (538‑3947) for more information on any of the support services listed below.
One-on-one support
- A dedicated case manager is assigned to every patient
- Patient access managers are available to work with healthcare providers and patients to overcome common barriers to therapy
- Patients receive routine calls from a licensed pharmacist, which focus on their progress and treatment goals
Access assistance
- Access and support for patients with and without insurance
- Information on a $0 co-pay program and other financial assistance
- Convenient, free specialty pharmacy services, including 24/7 support and home delivery of KEVEYIS® (dichlorphenamide)
Pharmacy support
- PANTHERx, the exclusive specialty pharmacy for KEVEYIS, is available to all KEVEYIS prescribers and patients
- PANTHERx includes outreach from dedicated clinical pharmacists
- Watch a video to hear from real patients enrolled in the Strongbridge CareConnect program and their experience with PANTHERx Rare
Genetic testing
- Uncovering Periodic Paralysis is a no-cost gene panel testing program for patients who may have PPP as well as their eligible first-degree family members
- The Periodic Paralysis Panel includes analysis for both hyperkalemic and hypokalemic periodic paralysis, testing for the four most common associated genes: SCN4A, CACNA1S, KCNJ2, and RYR1
- Visit www.UncoveringPeriodicParalysis.com to order a genetic test or request a specimen collection kit
Patient education
- Information on PPP management and treatment
Community connection
- Information on advocacy and support group communities as well as live and virtual programs about PPP
*Eligible patients pay as little as $0 with a maximum annual savings of $10,000. The authorized specialty pharmacy will activate the co-pay card for eligible patients and apply for each prescription until the annual maximum has been reached. This card is not valid for prescriptions that may be reimbursed under a federal or state healthcare program, including Medicare, Medicaid, or any other similar federal or state healthcare program, including any state pharmacy assistance program. For additional questions about the co-pay program, including eligibility, call Strongbridge CareConnection at 844-KEVEYIS (538‑3947).
Important Safety Information for KEVEYIS
What is KEVEYIS?
KEVEYIS (pronounced keh-VAY-iss) (dichlorphenamide) is a prescription drug used to treat primary hyperkalemic periodic paralysis, primary hypokalemic periodic paralysis, and other similar diseases.
What should you tell your healthcare provider before taking KEVEYIS?
Tell your doctor if you are allergic to dichlorphenamide or other sulfa drugs; if you take high doses of aspirin, or if you have lung or liver disease; if you are pregnant, plan to become pregnant, or are breastfeeding or plan to breastfeed.
What should you know about KEVEYIS?
- Severe allergic and other reactions have happened with sulfonamides (drugs such as KEVEYIS) and have sometimes been fatal. Stop taking KEVEYIS at the first sign of skin rash, swelling, difficulty breathing, or any other unexpected side effect or reaction, and call 911 right away.
- Tell your healthcare provider if you take aspirin or if another healthcare provider instructs you to begin taking aspirin. High doses of aspirin should not be taken with KEVEYIS.
- KEVEYIS can cause your body to lose potassium, which can lead to heart problems. Your healthcare provider will measure the potassium levels in your blood before you start treatment and at certain times during treatment.
- Tell your healthcare provider about all other prescription and over-the-counter medicines you take, including supplements, as some medicines can interact with KEVEYIS.
- While taking KEVEYIS, your body may produce too much acid or may not be able to remove acid from the body. Your healthcare provider may run tests on a regular basis to check for signs of acid buildup.
- KEVEYIS may increase your risk of falling. Tell your healthcare provider right away if you experience a fall while taking KEVEYIS.
- The risks of falls and acid buildup are greater in elderly patients.
- It is not known whether KEVEYIS is safe or effective for people younger than 18 years of age.
What are the most common side effects with KEVEYIS?
The most common side effects are a feeling of numbness, tingling or burning (“pins and needles”) in the toes, feet, hands or fingers; trouble with memory or thinking; feeling confused; and unpleasant taste in the mouth.
These are not all of the possible side effects of KEVEYIS. Call your healthcare provider for medical advice about side effects. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.
Please see KEVEYIS Important Safety Information and Full Prescribing Information.